Make the Spinraza drug released by the Ministry of Health for SMA carriers
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Addressed to: Ministry of Health
Spinal muscular atrophy (SMA), a degenerative disease of genetic origin, can be treated by the drug Spinraza, which has recently suffered restrictions for its use. The remedy was initially released without limitations to types of cases according to the age of the patient. Currently, the Ministry of Health imposes some restrictions on the use of medication, making it difficult for people with spinal muscular atrophy to start treatment. This medicine, Spinraza, has to be released for the people who really need it, definitely, so that this medication can save their lives. People who have rare diseases need easy access to medications for treatment, although the diseases are not yet cured.
People with the most severe type of the disease can lose their movements and have difficulties in exercising basic motor functions, such as breathing and swallowing. Patients like the girl Laissa Silva, 12, await the release of the remedy to resume treatment. For her every second without the medication directly affects her recovery.
WE WANT THE MEDICINE SUPPLIED BY THE SINGLE HEALTH SYSTEM!
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